She is quick to share the positive aspects of raising children with down syndrome. The bezencon family found out their unborn baby boy would have down syndrome. He is the only child in his school with down syndrome, and the school district has given him the fancy title of exceptional child. Jan 15, 2020 as firsttime parents, raising a child with down syndrome is our normal. They have met the expected challenges, such as education and social integration, as well as the unanticipated challenges, such as societal ignorance and family conflict. Writers raising children with down syndrome children with. Aug 15, 2016 the bezencon family found out their unborn baby boy would have down syndrome. Raising a child with down syndrome focus on the family.
The real challenges of raising my child with down syndrome being the mom of a child with down syndrome has its challenges, but i dont think people know all of the challenges. One family, genetic identity and muscular dystrophy. In fact, she so enjoyed raising a child with downs that she also adopted a baby girl with downs. Recommended books for families of children with down syndrome. Where to turn when your child is diagnosed with down syndrome. Raising robust readers is personalityperfect for those with down syndrome. The beauty of raising a child with down syndrome here is there is always a lot of space to play and run around.
At raising robust readers, we believe in going beyond the alphabet and whole word instruction to provide a reliable foundation in independent reading for adults and children with down syndrome. The doctors appointments, therapy sessions, and challenges that often accompany a diagnosis are simply a part of life. Aug 27, 2019 sherri will talk about being pregnant with a child with down syndrome and the early years of her sons life. Our son stephen is now 26, and as we look back we see things we did right and things we could have done better. The parents guide to down syndrome book by jen jacob. Writers who are raising children with down syndrome may be held to stricter rules for parenting, selfreflection, and choices related to selfdisclosure. As a pediatrician for 40 years, i have been involved with many families confronted with the task of raising a child with down syndrome. Separating a son from a down syndrome diagnosis in. The syndrome is a disability, as she makes clear, not an illness and certainly not a tragedy. The doctors appointments, therapy sessions, and challenges that often accompany a. I also wrote about my divorce and the lifelong implications it had on her life. Ndsc is also an authoritative source of information on down syndrome, offering such resources as its new parent package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges and joysof raising a child with down syndrome. Tips on raising a child with down syndrome ask dr sears.
Children with down syndrome, of course, are a blessing to any household, but just getting started in terms of organizing care and financing can be overwhelming. Its full of uplifting advice and best practices gleaned from hales personal and professional experiences raising a son, now an adult, and 20 years spent tutoring children, teens, and adults. The joy of raising a child with down syndrome duration. Stories of a down syndrome diagnosis, available globally. Advice, information, inspiration, and support for raising your child from diagnosis through adulthood ebook written by jen jacob, mardra sikora. As a result, iceland is on its way to eradicating down syndrome. An essential book with indispensable advice for parents and teachers of kids with down syndrome or any other mental disability. We realize our loved ones may have special needs, learning disabilities, and cognitive challenges. Many textbooks have already been written about down syndrome by professionals so i didnt set out to write another one. Books for parents of children with down syndrome 61 books. Google scholar sloper p, knussen c, turner s, cunningham c. The mediocre moms guide to raising a child with down syndrome or any kid for that matter there are lots of articles out there praising parents as superheroes for raising children with down syndrome or other conditions, but what if youre a mom or dad whos perfectly average. But instruction can be easily adjusted and adapted for all ages and ability levels.
There arent enough childrens books about down syndrome, and this. The best down syndrome book resources for parents and. Separating a son from a down syndrome diagnosis in raising. Covering the best practices for raising and caring for children with down syndrome through age five, this book is invaluable to new parents who have welcomed. The real challenges of raising my child with down syndrome. However, there is a vast community available that has resources ready to help. The paperback of the the parents guide to down syndrome. Sep 18, 2011 a different journey takes us from the birth of the authors daughter, an exceptional child with down syndrome, to her child s adulthood, and all of the significant events occurring to mother and daughter in between.
For parents of babies born with down syndrome, however, the experience of breaking the big news can be as fraught with anxiety as it is. Babies with down syndrome, a new parents guide karen straygunderson great. As the father of a daughter with ds, i can honestly say that pretty quickly he will realise 98% of raising a child with ds is the same as raising any other c. Down syndrome center for parent information and resources. Raising a child with down syndrome has its unique joys and challenges. This book has a little of everything raising a special child, becoming a single parent, etc.
As firsttime parents, raising a child with down syndrome is our normal. Discussing future opportunities, including employment and housing options. Learn practical tips to take the best care of your child, your family, and yourself. It is full of practical tips and stepbystep instructions for envisioning their childs future, developing a transition plan and seeing it through. She lives in iowa with her husband and four children. Down syndrome reading strategies raising robust readers. Differences in education, culture, economic status, or other social markers may be less divisive than issues shared from similar backgrounds. Learn your likelihood of having a baby born with down syndrome, as well as some of the issues faced when raising a child with special needs. Dec 27, 2017 the biggest way to heal that wound in his heart is for him to spend time with his sons. A child with down syndrome is just like any other child, needing doctors appointments, backtoschool clothes, and rides to birthday parties. In the book, the child with downs syndrome is beautiful. Down syndrome parenting 101 is a savvy and inspirational guide for parents, grandparents, and anyone who shares life with a person with down syndrome. Oct 24, 2017 for all of these parents, raising a child with down syndrome has altered their perspectives as they watch their kids love deeply, accept others unconditionally, express great joy, show genuine concern, and generally think the best of people and situations. Aug 28, 20 some great reads about raising a child with down syndrome, including books for siblings and parents see more ideas about down syndrome, down syndrome kids, syndrome.
Jen jacob is the cofounder and vice president of the down syndrome diagnosis network. The biggest way to heal that wound in his heart is for him to spend time with his sons. Writers raising children with down syndrome children with special needs at bellaonline. Down syndrome reading program raising robust readers. Writers raising children with down syndrome children. Children with down syndrome aged less than 25 years in 2004 were identified from the idea intellectual disability exploring answers database, a populationbased register of children with intellectual disability in wa.
Raising henry is not just a forthright and poetic family chronicle. According to the national down syndrome society, down syndrome occurs in one of every 733 live births. Sharing down syndrome arizona raising arizona kids magazine. Jen is the author and a contributor for unexpected. And, remember, the current motto of the national down syndrome congress. Nearly 4 in 5 parents of children with down syndrome report a more positive outlook on life as a result, according to a study from the american journal of medical genetics. Readers might like to note that the information and advice provided in all the down syndrome issues and information development and education series is based on the view that we need to know what specific effects down syndrome has on childrens development in order to develop effective interventions and educational programs. Other european countries like demark have followed suit, and the u. First is to realize that these children have differences more than disorders and disabilities. Ndsc is also an authoritative source of information on down syndrome, offering such resources as its new parent package, a collection of materials refined over years to provide new and expectant parents with an initial understanding of the challenges and joysof raising a. Dec 17, 20 the syndrome is a disability, as she makes clear, not an illness and certainly not a tragedy. Its challenging getting past drivethru windows with a child blowing kisses and stealing the hearts of all the employees. While plenty of parents seem eager to avoid the prospect entirely, talking to those in the throes of raising a child with down syndrome reveals a much different perspective. Nov 05, 2017 research, however, shows that parents raising a child with down syndrome experience joy and satisfaction.
As a part of her role, she creates, moderates, and manages small online groups for more than 1,500 new and expectant parents. With the parents guide to down syndrome, you will have the tools you need to raise a happy, healthy, and thriving child. Downs syndrome novel tugs at americas heartstrings. Advice, information, inspiration, and support for raising your child from diagnosis through adulthood by jennifer jacob, sikora, mardra and a great selection of related books, art and collectibles available now at. It is designed to be simple, clear, and consistent to complement our learners strong propensity toward routine, structure, predictability and trust. New book for parents of children with down syndrome parents. Factors related to stress and satisfaction with life in families of children with downs syndrome. Direct health care costs of children and adolescents with. Whats it like raising a child with down syndrome in tanzania. Down syndrome parenting 101 is a savvy book for parents, grandparents, teachers. If a doctor has just given your child a diagnosis of down syndrome, youre likely experiencing a huge range of emotions. Down syndrome resources for new and expecting parents.
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